About Me
Please check out the new blog at saltyandsweet.org
I started Salty and Sweet in December of 2007 because I was tired of searching the internet for “Cystic Fibrosis” or “Cystic Fibrosis Related Diabetes” and only coming up with pages and pages of medical articles that only a few of the most intelligent people in the world could understand. Where were all the people who are living with this disease? I felt like I was the only CFR-Diabetic out there, which is an awfully lonely feeling!
This is why I decided to start my own blog. Other Cystic Fibrosis warriors must be out there. I believe we must band together, share with each other, and fight these horrendous diseases together. Knowledge is power. The more we know the stronger, and healthier, we each will be.
I have dedicated many hours of my life reaching out to help my doctors find a cure and new treatments for Cystic Fibrosis. Now I want reach out and connect with others who have CF, those who have CFRD, friends, family and anyone else who knows what it is like to live with health issues, and those wonderful people who support them.
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But there is more to me than CF and diabetes.
I love being silly, laughing at myself, building things, breaking things, fried pickles, froo-froo martinis, hula hoops, four-wheeling my truck…
I love yoga, singing in the shower, walking my hypo-allergenic dog, festivals, adventures, my last job as a robot design engineer, my new job as a data cruncher for pulmonary research at a children’s hospital, the Pacific Ocean, picnics, spending time with family, barbecues, wine, good tequila, bonfires on the beach, building sand castles.
I love the sun, live music, local/unique shops & restaurants, happy hour with friends, chocolate twizzlers dipped in peanut butter.
I like getting dirty but also greatly appreciate the finer things in life. I am addicted to spider solitaire and stupid facebook quizzes. I have always wanted to learn to surf, but one small problem… I can’t swim!
If you have something to say, email me. I’d love to hear from you.
Please pay a visit to the Salty & Sweet Shop!
Please check out the new blog at saltyandsweet.org
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Hi! I’m Salty.
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I will have an out of pocket expense of $6,700 this year to purchase an insulin pump and a continuous glucose monitor, that is after insurance covers their portion. I really need help with these expenses.
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Entries and comments feeds.
Aspen, I hope you find others who are a CF and CFRD warrior like you! Living in a chronic malfunctioning body is lonely, this I do know. But I don’t want you to feel so alone. While I don’t have your CF or CFRD challenges, I am here for you. I danced the day you were born and I will continue to dance everyday for you!
Your “Ant” Donlyn
Comment by Ant Donlyn — January 6, 2008 #
Until I read this post today I hadn’t realized there was such a thing as Cystic Fibrosis Related Diabetes. I’ll have to keep an eye out for sites about this to add to the diabetes search engine.
At some stage, I’d be interested in learning more about how CF caused diabetes. Maybe I’ll stumble across that in my searching.
Comment by Bernard Farrell — January 24, 2008 #
Does the impaired digestion of cystic fibrosis make it more difficult to take insulin appropriate to your meals? Does it make it difficult to treat hypoglycemia?
Comment by Jonah — January 29, 2008 #
Thank you for blogging. I see your posts over at cysticfibrosis.com. My little granddaughter has CF, and I read all I can to learn about CF.
Comment by Beverly — February 11, 2008 #
Hey Aspen!!
Thought I would leave a quick note here for ya…
Thoughts and prayers (and a quick kick in the bahootie for GreatWest) are with ya…any information that I can find…I will be sure to forward on to you…We can fight the bureaucratic machine that is Health Insurance…
Regards…
Comment by Laura — March 4, 2008 #
Hey! Keep on rockin’ Aspen.
I am 26 with CF and am glad I found your site. I founded and run the Rock CF Foundation, check it out if you get a chance. I am trying to raise funds and awareness to help improve the quality of life for CF patients through the arts and entertainment.
Your blog rules!
Rock CF,
Emily
Comment by Emily Schaller — March 21, 2008 #
I also have cfrd. I just found out this past year, but they thought it was steriod induced but then again my drs are slow and have just realized/diagnosed that I have CF. I’ve been telling them for 7 yrs that that’s what it is, now the diabetes and the stomach cramps…. 3 inconclusive tests (because the pediatric bands were too small for my arms to collect enough sweat!) You would think a genetic test would have been ordered. Since my brother died from it. Any who…now I at least know what I’m dealing with and can treat it properly! But then again maybe no treatment was the answer I’m soon to be 43 yrs old. Every since my treatments have started I feel worse. Hyper sal solution, tobi nebs zpack 3 times a week. “The Vest” Good luck on your quest my friend.
Comment by Laurie — August 11, 2008 #
Stumbled upon your website. My daughter is 17 years old( A senior in High school). She has been tested for CF 5 times. Two years ago this month we got our diagnosis, Primary Cilliary Dyskinesia or PCD. Similiar to CF in some ways. The doctors have told me, when they find a cure for CF, a cure for your daughter’s disease will come. PCD, doesn’t not have the funding that CF has. Good luck on quest, and I have the greatest amount of respect for you and what you have accomplished and are still accomplishing. I hope the cure comes soon.
Comment by Vickie — October 8, 2008 #
I happened across this website and wanted to say I have a Vest Airway Clearance System that I need to sell. My mother used it for several years with good results. It took some getting used to but she finally got used to it and used it faithfully. (Machine is in excellent condition!) If anyone is interested in purchasing this machine please let me know. (tarheelfans@bellsouth.net)
Comment by Kathy — November 18, 2008 #
Hi all.. My name is Rachel and I was diagnosed w/ CF when I was 3 and was diagnosed with CFRD about a month ago (I’m 20…21 in 4 mos!!!). I am EXTREMELY lucky in that I don’t have a serious case of CF at all. My PFTs are rarely ever below 130 and the only real problem I have is with digestion. I take pancrease for that though, and being that I’ve had this since I was three, a few pills have never bothered me. But now I have CFRD and I HATE IT!. I LOVE food and have NEVER had a problem gaining weight. Actually quite the opposite. I have trouble losing it. I recently started gaining a lot more weight which is the exact opposite of what’s supposed ot happen when a CF patient is diagnosed with CFRD. I am horrible at managing my carbs and will most likely have to depend on insulin if I don’t stop my bad habits. I need real support because no one I know has CF, CFRD, or even regular diabetes. I feel so alone in this entire fight. If anyone has CFRD please feel free to email me and share your stories. I’d love to have ANYONE to talk to about this
) (rmcguire21@hotmail.com)
Comment by Rachel — March 13, 2009 #