What a load of $#!t!

June 25, 2008 at 5:32 pm | In Challenges, Cystic Fibrosis Related Diabetes, continuous glucose monitor, diabetes, insurance | 2 Comments

Hmmmmm…. so after 6 months of fighting, and FINALLY winning “approval” for my continuous glucose monitor from GreatWest health insurance, they are refusing to pay! What the #3!!?!

I have no idea except to call a lawyer about this one. How on earth can they approve the device, agree it is medically necessary, but yet turn around and say ‘no, we don’t feel like paying for it’. How can they get away with this?!

Just had to rant. Any advice would be greatly appreciated.  If you know of anyone who has been through something similar can you send them my way? I am at a complete loss what to do. Was that fight that stressed me out, made me sick, just for the amusement of some darned medical director at the insurance company?!

I’m going to go get my hair done… hopefully that will make me feel a little better. arg.

Amazing evening

June 23, 2008 at 12:30 pm | In Music, Support | Leave a Comment
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Photos coming soon!

Saturday night was The Aspen Fund gala, held to help raise money for my medical expenses. What an evening and what a turn out! I want to thank every single person who attended. You each hold a special place in my heart.

Aside from seeing a lot of my amazing friends (and making a few new ones):), the highlight of the even is when Angie Stevens and Susan Phelan put on the best show ever! Susan showing up was a complete surprise to me. I’ll give you the details soon! (I hope I can figure out how to upload the video I took, it ROCKS!) Sales of merchandise was donated to the fund, which was…. I am speechless. Thank you Angie and Susan sooo much. We could not have had such a successful event without you!

Due to circumstances, we did not obtain a proper liquor license ahead of the event. The donated beer from Flying Dog Ales and the liquor from Peach Tree Distillers was taken to Cap City Tavern and served to our guests when they turned in the cards we had donated/printed by Yellow Dog Printing (they looked awesome!!). Cap City Tavern saved the day! The beer was yummy and the liquor was great too. I’m going to post a review soon. Just wish I took some pictures of the food, it was beyond tasty!

I want to send a special thank you to everyone who pitched in to help organize this event. I appreciate all the time, dedication and effort you put into making this a successful event. I can not thank you enough!

Ooh! and don’t forget there is an autographed Carmelo Anthony Nuggets jersey up for bid on ebay!

If anyone reading this attended the event and took pictures, could you please send some my way? I tried to take a few with my camera, but I have been so shaky lately only a couple turned out. Thanks!!!

Below is a list of sponsors. Please support them!

Angie Stevens and Susan Phelan (of Angie Stevens and the Beautiful Wreck) – Beautiful people, beautiful music. Just straight up awesome.

Flying Dog Brewery – Tasty beer!
Peach Tree Distillers – Yummy booze!
Yellow Dog Printing – Great printing job on our cards and posters. Go there if you need some printing done!
Cap City Tavern – Saved the day! AWESOME food. Good booze and really fun people.

Miss my Flash

June 21, 2008 at 9:38 am | In Cystic Fibrosis, Cystic Fibrosis Related Diabetes, diabetes, insulin pump, insurance | 2 Comments
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On Tuesday I started using a new blood glucose meter. I have been using a FreeStyle Flash for several years and absolutely loved it (quite ticked to hear they are no longer making the Flash). In fact a few weeks ago I found a new feature on it that made me fall deeper in love *sigh* with it. But I decided to try the OneTouch UltraLink since it works with the Minimed insulin pump.

To get ya all non-diabetics up to speed, a blood glucose meter tests the amount of glucose floating around in your blood at the point of the test and quantifies it for comparison. This differs from the continuous blood glucose monitor system (CGMS) that I have been trying for many months to get my insurance to pay for (still to no avail). Simply, a meter is like a still frame photograph, a monitor is more like a movie.

The UltraLink has one super-awesome feature when used with a Minimed insulin pump (I guess the most current models only), it magically beams my test result right over to the pump, which allows me to skip the step of sitting there and scrolling to the right number allowing me to dive in to my awaiting food faster. It happens in the blink of an eye. Very slick.

My biggest issue with the UltraLink is the amount of blood it takes to test. OneTouch UL requires 1microL of blood (a fairly large drop) and the FreeStyle uses 0.3microL. It is very difficult to get a whole 1microL in one splunk of my lancet. It’s hard to judge if I got enough blood before the little vampire-like test strip starts sucking my blood into the meter. I can add more blood to the FreeStyle if I didn’t get enough, but I can not to the OneTouch… Kind of like the name, I have One chance or I waste a strip and have to do it all over again. Just now I attempted to test three times before I was successful. Just ridiculous!

While chatting with other diabetics it seems quite a few have issues getting FreeStyle test strips (the disposable strips that suck the blood into the meter), because OneTouch seems to be preferred by insurance companies due to cost. Now… In my past several years (probably 5 years) of using the FreeStyle meter I bet I can count the number of wasted test strips on one hand. Today so far, I have already wasted four. I am already on my second container of four, for my entire month’s allotment, and I am only three days in to my monthly order. I really doubt that FreeStyle strips cost ten times the amount of OneTouch strips (the rate I am going through them). Now how is that for cost savings?!

The Flash… I could go on and on. Aside from my major compliant above, the Flash has a backlight, so I can see my results in dim light (restaurants, dusk outside, at 3am). Also what made me fall even more in love was what I am calling a ’stick light’. I accidentially discovered this fancy little feature not long ago and it quickly became a much desired feature in a meter for me. What it does is send a little beam of light down the test strip (just above it to be precise) so I can see where my speck of blood is and the location on the strip that I need to aim for. This was unbelievably handy when I didn’t want to leave the theater in the middle of Iron Man just to do a post-meal test.

The UltraLink is a very basic meter. It tests and sends my results to the insulin pump. That’s it. No bells, no whistles, no nuttin. No backlight, no stick light, no ability to add extra blood. And it is huuuuuuuuuge. Shoot, I used to carry entire purses as large (tiny?) as the meter case!

I definitely have more freedom with the FreeStyle. I think I will switch back as soon as I finish with my few boxes of test strips…. which since I waste so many, will be very soon!

I’m bored

June 19, 2008 at 6:04 pm | In Life in General | 1 Comment

This phrase when spoken from my lips strikes a slight fear and a little excitement in my friends. They never know what is going to happen next. That phrase meant we would probably promptly be off shopping (where they would spend their paycheck, but I couldn’t find a darned thing I liked), or off to get a new piercing (want to get my nose pierced again once it heals from surgery, I miss it, yet have no idea why), and once a friend ended up getting her first tattoo (I couldn’t and still can’t decide on a design, now I think permanent tattoos aren’t for me).

I am hoping to ride out this wave, sitting here on my couch, hoping the desire to do something dramatic will quickly pass before I end up doing something I may regret.

Here’s a picture of Brodie to keep you company until I post again (possibly more tonight).

Conehead

My parents apparently got bored while puppy-sitting their grand-puppy when I had surgery. Darned dog, every time I get sick he ends up having issues himself. This time he had an infection in his paw. It’s all cleared up now, but he is such a licker we had to put his cone-head on until it healed. They were bored, or trying to entertain me with the picture and put two on for good measure.

Happy Father’s day! (belated)

June 18, 2008 at 12:11 pm | In Challenges, Life in General, Music, Support | Leave a Comment
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Yesterday, Sunday, (ok, it took me a few days to post this :) ) I took my pop to the Taste of Fort Collins where we saw one of my most favorite musicians preform. Angie Stevens! with her band The Beautiful Wreck (what a kick ar$e name!). Angie holds the honor of Best Singer/Songwriter by Denver’s biggest alt-weekly (2007), Westword and Hapi Skratch Entertainment’s Emerging Artist of the Year!

Such a sweetheart! I snapped a few photos with my phone. We had a great time. Thanks for the biggest hug ever Angie! Check out her website at www.angiestevens.com. A totally awesome performer, if she is ever in a town near you, check her out. Her shows are sooo much fun!

Angie Stevens and the Beautiful Wreck

Angie Stevens and the Beautiful Wreck

Angie Stevens at the Taste of Ft Collins

This little girl peaking through the fence reminds me of how I wanted to grow up and be a singer. Now I can’t carry a tune! hehe

I love you Angie!!!

Regrets

June 18, 2008 at 6:47 am | In Life in General | 2 Comments

Often I face the issue of how to pay for my medical expenses.  The bills add up faster than bunnies multiply.
I asked one of my good friends for ideas on how to raise some money for my medical expenses. I was thinking, bake sale, selling candy bars, ya know, little things.  Some how this turned into a large extravaganza including a concert and an art showing.  I was so thrilled and wanted to help out in every way.  I saw big things happening, I even had the desire to turn this event into something that could help other people who were in similar situations as me. Unfortunately I had become ill to another CF exacerbation (lung infection) and was busy having/recovering from sinus surgery and was not able to help organize this event.

My friends quickly took over the planning.  In fact two fellas who were mostly strangers when this began, took this challenge by the horns and have organized an awesome event that will be taking place this Saturday.  They began The Aspen Fund.  The fund initially will help me with my medical expenses, and I had hopes of taking it over and turning it into a full fledged non-profit organization to help others eventually.

The Aspen Fund postcard

The past few days I have been in tears.  The stress of this event has really taken a toll on everyone involved.  I didn’t mean for this to stress everyone out to the point they are so mean/evil/hurtful to others.  I am starting to regret asking for help.  And after it took me so long and how hard it was for me to do, I feel absolutely horrible.

I am so thankful for everyone involved in this event and I am very sorry if it has caused you any pain, hurt feelings or undue stress.

This leaves me to wonder why something so loving, caring and beautiful could leave someone like me feeling so horrible.

Remembering diabetes

June 13, 2008 at 7:05 am | In Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Life in General, diabetes | Leave a Comment
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I am finding the hardest part of diabetes is ‘remembering’.

I have to remember to check my blood glucose levels:
when I wake up
before every meal
two hours after every meal
before bed
sometimes before driving
sometimes before/after snacks
sometimes at 3 am to make sure I am not sinking into oblivion
every time I turn around

I have to remember to make sure I have enough insulin to make it through the day. If not I must remember to bring all the supplies with me:
On shots:
new bottle of insulin
plenty of syringes for many meals and snacks
On the pump:
new reservoir for the pump filled with insulin
new infusion set (tubing and such to connect the pump to me)
inserter popper thingy to put the infusion set in me
alcohol swab to clean the new site

I have to remember how many carbohydrates are in my favorite foods. Or remember to bring my carb counting book with me. (this is the hardest and most time consuming part of diabetes for me). I like variety in my diet, so I have to sit before I eat and look up everything while my food gets cold.

I have to remember if I am on certain drugs that I have a different carb to insulin ratio. Darned that I can’t remember my seven and eight’s times table, grew too reliant on my calculator in college… reminds me to bring my cell phone along so I can use the calculator if I need to divide by 7 or 8!

Oh and don’t forget the glucose meter along with enough test strips!

(you should see the size of my new purse!)

hmmmmm…. am I forgetting anything?!
Oh yea! I have CF too, now where is THAT pill case?! hahaha
No wonder why I wander around the house looking for my cell phone, only to realize I am talking on it! LOL

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