Latest scoop on the pump

April 29, 2008 at 7:33 am | In Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Nutrition, continuous glucose monitor, diabetes, insulin pump | Leave a Comment
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I think it is time for an update on the case of the un-insurance-covered insulin pump and continuous glucose monitor system.

My doctor said we are finally ready to pursue my final appeal of insurance coverage for an insulin pump and continuous glucose monitor.  It took a while to find and compile research studies since simply there are so few (we even had to wait for one to complete!).  CF related diabetes is very rare, considering the size of the general population and it is also a fairly newly discovered complication of CF only since us cystics are living so much longer now days.  I have figured there are only  approximately 4,000 people in the US with CF related Diabetes. Finding info on it, none the less, hard data and research studies is very complicated.

Regardless of this, my insurance companay doesn’t care that I need to take up to 8-9 insulin shots a day, if I were to follow my prescribed nutritional needs.  That is on a rough day.  At a minimum I take 5 shots a day.  Most diabetics with Type 1 diabetes take about 3-4 shots a day, minimum.  My nutritional needs are much different than someone with Type 1, which makes things even harder to balance.  My insurance company is not allowing coverage for an insulin pump because I do not have Type 1 diabetes…. now does this sound fair to you?!

I sent in my paperwork the other day, and my doc is sending in her stuff soon.  Please wish good thoughts and send positive vibes for me and my future pump.  Hopefully this time the reviewers will actually listen to my doctor and to common sense!

First Monday Challenge 1.0

April 28, 2008 at 7:34 am | In Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Nutrition, diabetes | 7 Comments
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Come on people!  Don’t make me do this all by myself!  Let’s support each other in improving our health! (okay, I’m sorry, that is a little too cheery for a Monday morning, I agree). Today I start the first step of my new healthy “diet” or shall we say ‘lifestyle change’?  This nutritional change is for improving health overall, heart health, lung health… not just for people with Cystic Fibrosis, or Diabetes, but for everyone!  :D

This challenge begins with the first steps of eliminating High Fructose Corn Syrup (HFCS).  Apparently this is in almost EVERYTHING, so it is quite a challenge to begin with.  So, as a baby step, I am challenging myself and you to quit drinking soda.  Now, I think diet soda is ok, but why bother since the carbonation isn’t good for you anyway.  I’d have to have someone read a label and post a comment for me since I don’t drink diet. The “fake” sugar gives me a nasty headache. Can you do that for me?

While researching HFCS I was blown away by the amount of negative impacts this chemical has on the human body.  First, it is the number one source of empty calories in the average American diet. Empty calories are just a complete waste, they serve no good for your body since they deliver no  nutrition.  Plainly, they just make you fat.  Also, HFCS is believed to be a contributer of the increase of Type 2 Diabetes.  (now, why would you increase your risk of something so horrible, if you can control it?!).

HFCS is composed of fructose and glucose and are monosaccharides. Fructose breaks down very quickly and easily in the body to form glucose, and well, glucose is glucose.  Since these chemicals enter the system so quickly they will spike the glucose levels in the blood.  It is well known that high blood glucose/sugar causes harm to the body.  Researchers believe that continuous spiking of blood glucose levels may be a contributer to Type 2 Diabetes. Even the “normal” human body has trouble keeping up with these unnatural spikes.  That’s a double whammy against HFCS with concerns to Type 2 Diabetes.

Use of sweeteners

Doc says that the best substitute is sugar.  Plain old sugar.  This is closer to the earth, hence your body has an easier time dealing with it.

As if that isn’t enough info to convince you, my doctor has informed me that Fructose is also an inflammatory chemical. Inflammatory chemicals can cause heart disease and other nasty things.  Having CF, which causes a lot of inflammation in the lungs, I am super interested in any ways possible of reducing this inflammation.

So, back to the challenge.  I have made the decision to test out this theory, see how I feel after a while after eliminating this from my diet. I think I should notice if my lungs are feeling better in a week or so. I noticed all the juice in my refrigerator has HFCS in it, so that isn’t a good replacement. So… I am looking to you for suggestions as to what to replace my sodas with… help me?!!!  :)

Changes with living longer

April 25, 2008 at 12:48 pm | In Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Life in General, Nutrition, diabetes | 2 Comments
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I had something strange happen to me the other day in clinic. I walked by some of the rooms on the way to mine and I saw Cystic Fibrosis patients with gray hair! I had NEVER ever seen that before! It was kind of a weird realization that I may get gray hair someday! It may sound strange, but growing up with an expiration date stamped on my forehead (which is wearing off with all the new technological advances) I never thought I would have to worry about that! :)

To top off my old age shock, my Doc wants me to start eating healthier, for my FUTURE?!!! My word! It was a lot to digest! All very good news, but wow! Something I never expected!

It is very hard for me to adjust to the thought of being on a “diet”. For all of my life my diet was to eat anything and everything humanly possible. Now I need to start thinking about my future health which includes all the real world issues that everyone else has to deal with. My doc suggests a “heart healthy” plan, or an anti-inflammatory diet, but with the reminder that I am on a high calorie, high protein diet.

This new lifestyle change will be difficult since I live off of fast food. But I am going to do it! The anti-inflammatory diet is something I have been interested in for a while and now I guess it is time to put it into action. I noticed while I was sick over the past few months that if I would eat a vegetarian dinner I would feel much better in the morning. Refreshed and ready to go.

Not only is AHA “heart healthy”, “no fad diet” plan good for people with Cystic Fibrosis and/or CF related Diabetes, but it is good for EVERYONE!!! :D

Good advice my doc gave me about changing my diet was to take “baby steps” so I don’t get overwhelmed, and to “think about all the good things” I get to eat with my new diet plan. Over the next few months or so, I will fill you in on what I am learning, step by step. I may even give YOU a challenge or two to help you improve your life!

I have soooo much news about a lot of various things I want to tell all of you about, I hope I can get a few minutes this weekend to write at least some of it down! In the mean time, take care!

It’s so good to be free!

April 22, 2008 at 12:35 pm | In Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Nutrition, Tune-up, diabetes | Leave a Comment
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Muppets of Oz ScarefrogToday I feel like the Scarecrow in the Wizard of Oz just after Dorthy helps him down off of his watch-post. Dancing around with so little grace. “I am freeee!” I am so happy to be off the IVs and have that painful PICC line out. This weekend was so busy, I didn’t really have a moment to think about it. Except for when I hopped in the shower without having to wrap my arm up in Glad Press-n-Seal (the best stuff in the world to wrap up with! (Learned about it from my step-sis who used it when she had a cast. She is so handy!), it felt so naughty! hehehe

Last week I was on a short burst of Prednisone to help ease some of the inflammation in my lungs. What a number that did to my blood sugar levels (pun intended :D )! Can you say SKY high?!! I was on twice the regular amount of long-lasting insulin, and my insulin to carb ratio was 1gram:5units, which is also twice the amount of my usual. It took a while to figure that out so on average I was taking 6 shots a day, to cover everything. Apparently steroids, natural and medication-wise, have a huge affect on the body’s glucose levels. I am going to look more into it because my geeky mind is really curious. I’ll let you know more about it when I do.

I am not sure if it was the Prednisone, or if I was just feeling better, but my appetite was HUUUGE! I gained 11 pounds over the course of those 3 weeks, from 104lbs to 115lbs. Broken Piggy Bank Unfortunately stress really affects my appetite and when I went through that heartache, I dropped most of the weight. But I am doing better now and hoping that I can regain most of it back. I felt soooo healthy. I am one of those rare women who love to hear “you are looking fat!” Because to me, it means I am looking healthy! I REALLY do not want to look at my food bill from the past month… I bet it is as large as my appetite was!

The day is FINALLY here!

April 18, 2008 at 12:05 pm | In Challenges, Cystic Fibrosis, Tune-up | Leave a Comment

I am soooo happy to be getting rid of my PICC line today!  I am done with IVs!!!

Wish I could show you my happy dance!  I do my happy dance every Friday while my co-workers laugh their arses off at me!  Today get’s an extra little rump shake!  YEAAA!!!

Friends

April 16, 2008 at 11:01 pm | In Dating, Life in General, Music, Support | Leave a Comment
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I think I am going to have Johnny dedicate this to my ex-special-someone on Friday… Johnny is going to be so disappointed I am afraid. *sigh* Love ya Johnny!

Ok, now that I have aired my thoughts… I am feeling much better!

Stay tuned for your regularly scheduled programming…. (or how ever that goes)

Down in the dumps

April 16, 2008 at 12:31 pm | In Challenges, Cystic Fibrosis, Life in General, Support, Tune-up | Leave a Comment

It has been a little while since I last posted. Thought I would check in and let you all know things are going well. I am almost done with my IVs, it feels like I have been on them foreeever! That’s a sign I must be feeling better! I did a night-time room air oximetery reading last night to see if I can go without oxygen at night. I think I passed with flying colors, but we will see once we get the numbers out of the little machine.

On another front, I am dealing with a lot of other personal relationship issues, it is sad. Which makes it a little hard to put my life out there in writing right now.

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