Still at the health club
March 30, 2008 at 9:26 pm | In Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Tune-up | 3 CommentsTags: hospitalization
I’m still in the hospital tonight. Just thought I would make a quick post before heading off to bed.
It is quite a surprise to be back on IVs so soon. Usually I only do them once a year, but this is my second time in three months. I am a little disappointed as I have stepped up my care at home, yet I end up worse off than I started. Apparently it is common, I guess it is because I started stirring stuff up in my lungs, pissed it off, and now it is retaliating.
The food sucks, I miss the time I was admitted on the Research wing with the personal chef and unlimited kitchen. Ahhh the good ol’ days.
I asked for a low/no dairy diet since it plugs me up in all directions, but the hospital nutritionist told me to drink some warm water and I will feel better. What a laugh! I wanted to kick her. I have been trying my best to choose items that are dairy free, which is hard given the few choices I am given.
My nurses have all been super awesome always checking in to make sure I am comfortable and am doing ok.
The entire reason I chose to come into the hospital was to get four respiratory therapy treatments a day, done by professionals. Well, I have yet to experience that. So far I received one treatment the first day and slowly have worked up to three treatments today. Apparently the respiratory staff here is too busy to help me. And YES, I have raised holy hell about it. Wish me luck in getting four treatments tomorrow.
Over all, I think I turned a corner today. I got a lot of crud out of my lungs with my afternoon treatment using an IPV (I’ll post about that soon). I am feeling a bit clearer, although I am still quite short of breath when I walk around my room, even on 2 liters of oxygen. My oxygen stats are up a little, from 88% (room air) when I first came in to 96% tonight (but on oxygen). My weight is stable, but I was hoping I could gain a few pounds.
The doc is changing up my antibiotics in hopes to really kick these lung bugs in the butt. Right now I am on three, tobramyacin, aztreonam, and cephtaz. Doc is going to look at which drug caused my penicillin allergy and may switch one of those for merrem.
My blood glucose levels were really high when I first came in. Doc increased my 24-hour insulin dose and it seemed to work well since this morning I had a fasting level of 104, which is in a normal range. I am really happy about that.
Guess that is all for tonight… hope everyone is doing well!
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88% pulse ox… dang, girl. You must have been downright light-headed. The lowest I ever remember being was 92% and that was friggin’ miserable and they brought me oxygen.
I hope you get your pounding more often today, because I’ve never heard of something as stupid as building up to 4 poundings per day, unless it’s drinking warm water to counteract dairy.
I’ve got 3 days of Tobramyacin and Fortaz left, then I can go back to showering without ripping off chest hair from taping up my port window with 3M foam waterproof tape.
Get well soon!
I’d kick her for you, but FL is a bit far for that personal touch.
Comment by Jesse Petersen — April 1, 2008 #
We MGers call it “Club Med” Waaaa Whooooooo!
Comment by Donlyn — April 1, 2008 #
Light-headed? I thought that was because of my new bleach blonde hair color!
Good news I am home now. Before I left I had 96% pulse ox on 2 liters of O2. 92% on room air. After I had acclimated to room air my nurse and I took a short walk and found my stats dropped to 85% with “exercise”. Now I have O2 at home. Quite a mental adjustment it is taking.
Jesse- have you ever tried Aquaguards? I have a friend with a port who swears by them. Not sure how well they work personally. But anything is worth a try.
Comment by aspen — April 3, 2008 #